Michael M. Burgess is Professor and Chair in Biomedical Ethics at the W. Maurice Young Centre for Applied Ethics in the School of Population and Public Health. He also has an appointment in the Department of Medical Genetics. Burgess works from the Southern Medical Program at the Okanagan campus of UBC, but is frequently on the Vancouver campus for research collaboration, graduate student supervision, and to build collaborations between UBC campuses.
Burgess began his career at the University of Calgary in the Office of Biomedical Ethics with an appointment in the Calgary Institute for the Humanities (1984-1996). He also served on research and clinical ethics committees at several sites in Calgary. In 1996 he was hired into the Chair in Biomedical Ethics, and in the department of Medical Genetics, and as a clinical ethics consultant at the Children’s & Women’s Health Centre of British Columbia. He received the Killam Award for Excellence in Graduate Teaching in 2000, and was Principal of the College for Interdisciplinary Studies (2008-2011). In 2013 he began to work from the Okanagan campus, frequently visiting the Vancouver campus, with a focus on intercampus collaboration on research and graduate student learning.
iEthics course development. Member of working groups to develop ethics learning across health professions. 2013 and ongoing.
MEDG 535 Genetics and Ethics. Member of working group to redesign course (2013), Guest lecturer (2013, 2014, 2015, 2016).
Ethics learning in the graduate programs of SPPH. Co-chair with G. Poole 2013-2014.
Graduate Students (on supervisory committee)
Nicky Dhaliwal, Ph.D. in Interdisciplinary Graduate Studies, K. Culver (chair)
Kim Taylor, Ph.D. in Interdisciplinary Studies Graduate Program, A. Ho (chair)
Adrian Byram, Ph.D. in Interdisciplinary Studies Graduate Program, J Illes (chair)
Robert Diab, Ph.D. in Law (completed 2012), W Pue (chair)
Burgess, MM, H Longstaff and K O’Doherty. Assessing deliberative design of public input on biobanks. In S. Dodds and RA Ankeny (Eds) Big picture bioethics: developing democratic policy in contested domains. Routledge Press, forthcoming.
Douglas, Conor M. W., Elisabeth Wilcox, Michael Burgess, Larry Lynd. Why orphan drug coverage reimbursement decision-making needs patient and public involvement. Health Policy (2015) 119: 588-596.
McWhirter, Rebekah E. Christine R. Critchley, Dianne Nicol, Don Chalmers, Tess Whitton, Margaret Otlowski, Michael Burgess, Joanne L. Dickinson. Community engagement for big epidemiology: deliberative democracy as a tool. Journal of Personalized Medicine (2014) 4(4):459-474. http://www.mdpi.com/2075-4426/4/4/459
Regier DA, Bentley C, Mitton C, Bryan S, Burgess MM, Chesney E, Coldman A, Gibson J, Hoch J, Rahman S, Sabharwal C, Sawka C, Schuckel V, Peacock SJ. Public Engagement in Priority-Setting: Results from a pan-Canadian Survey of Decision-Makers in Cancer Control. Social Science & Medicine (2014) 122: 130-139. http://www.sciencedirect.com/science/article/pii/S0277953614006911
Chalmers D, McWhirter RE, Nicol D, Otlowski M, Burgess MM, Foote SJ, Critchley C, Dickinson JL. New Avenues within Community Engagement: Addressing the Ingenuity Gap in our Approach to Health Research and Future Provision of Health Care. Journal of Responsible Innovation (2014) 1(3): 321-328. http://www.tandfonline.com/doi/full/10.1080/23299460.2014.963002#tabModule
Burgess, MM, H Longstaff. Representing the Cultural Significance of Salmon in a West Coast Public Deliberation. In K Culver and K O’Doherty (Eds). Fishing and Farming Iconic Species in the Genomics Era. Concord, Ontario: Captus Press, 2014: 193-204.
O’Doherty, KC, H Longstaff, MM Burgess. Using Deliberative Democracy to Inform Policy on Applications Arising from Salmon Genomics Research. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species in the Genomics Era: Cod and Salmon. Concord, Ontario: Captus Press, 2014: 241-257.
Secko, DM, MM Burgess. Assessing Moral Perspectives on the Technical Application of a Fish’s DNA: An Interview Study with Salmon Genomic Researchers. In K. Culver & K. O’Doherty (eds.). Fishing and Farming Iconic Species in the Genomics Era: Cod and Salmon. Concord, Ontario: Captus Press, 2014: 205-226.
D Chalmers, Burgess MM, E Meslin, K Edwards, J Kaye, D Nicol. Marking Shifts in Human Research Ethics in the Development of Biobanking. Public Health Ethics (2014): 1-9. http://phe.oxfordjournals.org/content/early/2014/09/05/phe.phu023.full?keytype=ref&ijkey=QHgoiBJxypRrC4h
Burgess MM. How is the “public interest” defined in learning networks? Health Care Management Forum (2014) 27:143-144. dx.doi.org/10.1016/j.hcmf.2014.08.003
Timothy Caulfield, Sarah Burningham, Yann Joly, Zubin Master, Mahsa Shabani, Pascal Borry, Allan Becker, Michael Burgess, Kathryn Calder, Christine Critchley, Kelly Edwards, Stephanie M. Fullerton, Herbert Gottweis, Robyn Hyde-Lay, Judy Illes, Rosario Isasi, Kazuto Kato, Jane Kaye, Bartha Knoppers, John Lynch, Amy McGuire, Eric Meslin, Dianne Nicol, Kieran O’Doherty, Ubaka Ogbogu, Margaret Otlowski, Daryl Pullman, Nola Ries, Chris Scott, Malcolm Sears, Helen Wallace and Ma’n H. Zawati. A review of the key issues associated with the commercialization of biobanks. Journal of Law and the Biosciences (2014) 1: 94–110. doi:10.1093/jlb/lst004.
Burgess, MM. From ’trust us’ to participatory governance: Deliberative publics and science policy. Public Understanding of Science 2014 23(1): 48-52. http://pus.sagepub.com/content/23/1/48.long
O’Doherty, KC, MM Burgess. Public deliberation to develop ethical norms and inform policy for biobanks: Lessons learnt and challenges remaining. Research Ethics 9, 2 (2013): 55-77. DOI: 10.1177/1747016113488858
O’Doherty, KC, MK MacKenzie, D Badulescu, MM Burgess. Explosives, Genomics, and the Environment: Conducting Public Deliberation on Topics of Complex Science and Social Controversy. Sage Open (2013) 3, 1: DOI: 10.1177/2158244013478951.
O’Doherty, Kieran C, Alice K. Hawkins, Michael M. Burgess. Involving citizens in the ethics of biobank research: Informing institutional policy through structured public deliberation. Social Science and Medicine 75 (2012): 1604-1611.
O’Doherty, Kieran C., Tamara Ibrahim, Alice Hawkins, Michael Burgess, and Peter Watson. Managing the Introduction of Biobanks to Potential Participants: Lessons from a Deliberative Public. Forum Biopreservation and Biobanking. (2012): 10(1): 12-21.
Burgess, MM. Deriving Policy and Governance from Deliberative Events and Mini-Publics. In Michael Howlett & David Laycock (Eds), Regulating Next Generation Agri-Food Biotechnologies: Lessons from European, North American and Asian Experiences.: Routledge, 2012: 220-236.
Rodney P, Burgess MM, JC Phillips, McPherson G, Brown H. A Brief History of Health Care Ethics (revised for 2nd edition) In J. Storch, P. Rodney and R. Starzomski (Eds.), Ethical leadership for practice: An advanced sourcebook for nurses and colleagues in health care. Prentice Hall Health. 2012: 56-65.
Rodney P, Burgess MM, Pauly B, and Phillips JC. Complementary Approaches (revised for 2nd edition) In J. Storch, P. Rodney and R. Starzomski (Eds.), Ethical leadership for practice: An advanced sourcebook for nurses and colleagues in health care. Prentice Hall Health. 2012: 66-76.
Rodney P, d’Agincourt-Canning L, McPherson G, Anderson J, McDonald M, Pauly B, Burgess MM, & Phillips JC. Working Within the Landscape: Ethics in Practice (revised for 2nd edition) In J. Storch, P. Rodney and R. Starzomski (Eds.), Ethical leadership for practice: An advanced sourcebook for nurses and colleagues in health care. Prentice Hall Health. 2012: 98-125.
Rodney P, Harrigan M, Jiwani B, Phillips JC, Burgess MM. Toward More Ethical Policy. (revised for 2nd edition) In J. Storch, P. Rodney and R. Starzomski (Eds.), Ethical leadership for practice: An advanced sourcebook for nurses and colleagues in health care. Prentice Hall Health. 2012: 424-432.
O’Doherty KC, MM Burgess, K Edwards, R Gallagher, A Hawkins, J Kaye, V McCaffrey, D Winickoff. From Consent to Institutions: Designing Adaptive Governance for Genomic Biobanks. Social Science and Medicine 73 (2011): 367-374.
O’Doherty, K, MM Burgess and DM Secko. Sequencing the salmon genome: A deliberative public engagement. Genomics, Society and Policy 6.1 (2010): 16-33. http://www.academia.edu/482190/Sequencing_the_salmon_genome_A_deliberative_public_engagement
Longstaff, Holly and Michael Burgess. Recruiting for representation in public deliberation on the ethics of biobanks. Public Understanding of Science 19.2 (2010): 212-24.
MacLean, S and MM Burgess. In the Public Interest: Stakeholder Influence in Public Deliberation about Biobanks. Public Understanding of Science 19.4 (2010): 486-96.
Tansey, J, MM Burgess. Complexity of Public Interest in Ethical analysis of Genomics. The Integrated Assessment Journal 10.1 (2010): 53-61.
Walmsley, H, MM Burgess, J Brinkman, R Hegele, J Wilson-McManus and B McManus. Ethics of biomarkers: where are the borders of investigative research, informed consent and patient protection. Biomarkers in Drug Development: A Handbook of Practice, Application and Strategy. Ed. M Bleravins, R Rahbari, M Jurima-Romet and C Carini. Wiley, Feb 2010: Chapter 35.
Burgess’ research has spanned ethical issues in clinical care, research ethics, genetic testing, cultural issues, and biotechnology and health policy. He has published over 100 peer reviewed authored and co-authored articles and chapters. Since 2002 funding from Genome BC, Genome Canada and CIHR has supported the development of an approach to deliberative engagement of publics on controversial policy issues, with implementations in Australia, Canada and the US. Burgess’ current primary area of research is deliberative public engagement and participatory governance in health care allocation decisions and access to health data and bio-specimens. In 2016 he is running an online survey on funding expensive drugs for rare diseases, collaborating on public deliberations across Canada on funding for expensive cancer drugs, in California on public deliberations about newborn screening and use of blood for research, and on an approach to public engagement and participation in governance related to access to health data and stored samples.