SPPH REDI Book Club

Between Two Kingdoms: A Memoir of a Life Interrupted

By Suleika Jaouad

A searing, deeply moving memoir of illness and recovery that traces one young woman’s journey from diagnosis to remission and, ultimately, a road trip of healing and self-discovery.

In the summer after graduating from college, Suleika Jaouad was preparing, as they say in commencement speeches, to enter “the real world”. She had fallen in love and moved to Paris to pursue her dream of becoming a war correspondent. The real world she found, however, would take her into a very different kind of conflict zone.

It started with an itch – first on her feet, then up her legs, like 1,000 invisible mosquito bites. Next came the exhaustion, and the six-hour naps that only deepened her fatigue. Then a trip to the doctor and, a few weeks shy of her 23rd birthday, a diagnosis: leukemia, with a 35 percent chance of survival. Just like that, the life she had imagined for herself had gone up in flames. By the time Jaouad flew home to New York, she had lost her job, her apartment, and her independence. She would spend much of the next four years in a hospital bed, fighting for her life and chronicling the saga in a column for The New York Times.

When Jaouad finally walked out of the cancer ward – after three and a half years of chemo, a clinical trial, and a bone marrow transplant – she was, according to the doctors, cured. But as she would soon learn, a cure is not where the work of healing ends; it’s where it begins. She had spent the past 1,500 days in desperate pursuit of one goal – to survive. And now that she’d done so, she realized that she had no idea how to live.

How would she reenter the world and live again? How could she reclaim what had been lost? Jaouad embarked – with her new best friend, Oscar, a scruffy terrier mutt – on a 100-day, 15,000-mile road trip across the country. She set out to meet some of the strangers who had written to her during her years in the hospital: a teenage girl in Florida also recovering from cancer; a teacher in California grieving the death of her son; a death-row inmate in Texas who’d spent his own years confined to a room. What she learned on this trip is that the divide between sick and well is porous, that the vast majority of us will travel back and forth between these realms throughout our lives. Between Two Kingdoms is a profound chronicle of survivorship and a fierce, tender, and inspiring exploration of what it means to begin again.

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Tsqelmucwilc: The Kamloops Indian Residential School―Resistance and a Reckoning

By Celia Haig-Brown, Randy Fred, and Garry Gottfriedson

In May 2021, the world was shocked by news of the detection of 215 unmarked graves on the grounds of the former Kamloops Indian Residential School (KIRS) in British Columbia, Canada. Ground-penetrating radar confirmed the vestiges of children as young as three on this site of the infamous residential school system, which systematically removed children from their families and brought them to the schools. At these Christian-run, government-supported institutions, they were subjected to physical, mental, and sexual abuse while their Indigenous languages and traditions were stifled and denounced. The egregious abuses suffered in residential schools across the continent caused – as the 2021 discoveries confirmed – death for too many and a multigenerational legacy of trauma for those who survived.

“Tsqelmucwilc” (pronounced cha-CAL-mux-weel) is a Secwepemc phrase loosely translated as “We return to being human again.” Tsqelmucwilc is the story of those who survived the Kamloops Indian Residential School, based on the 1988 book Resistance and Renewal, a groundbreaking history of the school – and the first book on residential schools ever published in Canada. Tsqelmucwilc includes the original text as well as new material by the original book’s author, Celia Haig-Brown; essays by Secwepemc poet and KIRS survivor Garry Gottfriedson and Nuu-chah-nulth elder and residential school survivor Randy Fred; and first-hand reminiscences by other survivors of KIRS, as well as their children, on their experience and the impact of their trauma throughout their lives.

Read both within and outside the context of the grim 2021 discoveries, Tsqelmucwilc is a tragic story in the history of Indigenous peoples of the indignities suffered at the hands of their colonizers, but it is equally a remarkable tale of Indigenous survival, resilience, and courage.

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Tears We Cannot Stop: A Sermon to White America

Short, emotional, literary, powerful―Tears We Cannot Stop is the book that all Americans who care about the current and long-burning crisis in race relations will want to read.

As the country grapples with racist division at a level not seen since the 1960s, one man’s voice soars above the rest with conviction and compassion. In his 2016 New York Times op-ed piece “Death in Black and White,” Michael Eric Dyson moved a nation. Now he continues to speak out in Tears We Cannot Stop―a provocative and deeply personal call for change. Dyson argues that if we are to make real racial progress we must face difficult truths, including being honest about how black grievance has been ignored, dismissed, or discounted.

The time is at hand for reckoning with the past, recognizing the truth of the present, and moving together to redeem the nation for our future. If we don’t act now, if you don’t address race immediately, there very well may be no future.

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Care Work: Dreaming Disability Justice

In this collection of essays, Lambda Literary Award-winning writer and longtime activist and performance artist Leah Lakshmi Piepzna-Samarasinha explores the politics and realities of disability justice, a movement that centers the lives and leadership of sick and disabled queer, trans, Black, and brown people, with knowledge and gifts for all.

Care Work is a mapping of access as radical love, a celebration of the work that sick and disabled queer/people of color are doing to find each other and to build power and community, and a tool kit for everyone who wants to build radically resilient, sustainable communities of liberation where no one is left behind. Powerful and passionate, Care Work is a crucial and necessary call to arms.

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Demystifying Disability: What to Know, What to Say, and How to Be an Ally 

An approachable guide to being a thoughtful, informed ally to disabled people, with actionable steps for what to say and do (and what not to do) and how you can help make the world a more accessible, inclusive place.

Disabled people are the world’s largest minority, an estimated 15 percent of the global population. But many of us–disabled and non-disabled alike–don’t know how to act, what to say, or how to be an ally to the disability community. Demystifying Disability is a friendly handbook on important disability issues you need to know about, including:

• How to appreciate disability history and identity
• How to recognize and avoid ableism (discrimination toward disabled people)
• How to be mindful of good disability etiquette
• How to appropriately think, talk, and ask about disability
• How to ensure accessibility becomes your standard practice, from everyday communication to planning special events
• How to identify and speak up about disability stereotypes in media

Authored by celebrated disability rights advocate, speaker, and writer Emily Ladau, this practical, intersectional guide offers all readers a welcoming place to understand disability as part of the human experience.

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Redefining Realness: My Path to Womanhood, Identity, Love & So Much More

Redefining Realness: My Path to Womanhood, Identity, Love & So Much More is a memoir and the debut book by Janet Mock, an American writer and transgender activist. Mock establishes herself as a resounding and inspirational voice for the transgender community—and anyone fighting to define themselves on their own terms.

With unflinching honesty and moving prose, Janet Mock relays her experiences of growing up young, multiracial, poor, and trans in America, offering readers accessible language while imparting vital insight about the unique challenges and vulnerabilities of a marginalized and misunderstood population. Though undoubtedly an account of one woman’s quest for self at all costs, Redefining Realness is a powerful vision of possibility and self-realization, pushing us all toward greater acceptance of one another—and of ourselves—showing as never before how to be unapologetic and real.

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What if I Say the Wrong Thing?: 25 Habits for Culturally Effective People

In this compelling new tip book you’ll find innovative and surprising ways to keep your personal diversity journey moving and the diversity commitment of your organization. Written to make this information bite-size and accessible, you’ll find quick answers to typical What should I do? questions, like: What if I say the wrong thing, what should I do? What if I am work and someone makes a sexist joke, what should I say? 

What If I Say the Wrong Thing?: 25 Habits for Culturally Effective People by Verna Myers is a concise and insightful guide to fostering cultural competence and promoting inclusivity in diverse environments. The book offers practical strategies for individuals seeking to build stronger relationships across cultural differences, embrace diversity, and address unconscious biases.

The book is structured around 25 habits, each addressing a specific aspect of cultural effectiveness. Myers emphasizes that making mistakes is part of the learning process and encourages readers to focus on growth rather than perfection. Key topics include:

Awareness of Bias: Recognizing and challenging personal and societal biases that influence behavior and decision-making.
Active Listening: Creating spaces where people feel heard and respected.
Building Relationships: Engaging authentically with people from different backgrounds and avoiding tokenism.
Courage to Engage: Addressing uncomfortable topics like racism, privilege, and microaggressions openly and constructively.
Continuous Learning: Remaining curious and open to understanding new perspectives and cultures.

Myers uses anecdotes, examples, and actionable steps to illustrate her points, making the book approachable and practical. It’s an empowering resource for anyone striving to create more equitable and respectful personal, professional, or social environments.

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Disability Visibility: First-Person Stories from the Twenty-first Century

One in five people in the United States lives with a disability. Some disabilities are visible, others less apparent—but all are underrepresented in media and popular culture. Now, just in time for the thirtieth anniversary of the Americans with Disabilities Act, activist Alice Wong brings together this urgent, galvanizing collection of contemporary essays by disabled people.

From Harriet McBryde Johnson’s account of her debate with Peter Singer over her own personhood to original pieces by authors like Keah Brown and Haben Girma; from blog posts, manifestos, and eulogies to Congressional testimonies, and beyond: this anthology gives a glimpse into the rich complexity of the disabled experience, highlighting the passions, talents, and everyday lives of this community. It invites readers to question their own understandings. It celebrates and documents disability culture in the now. It looks to the future and the past with hope and love.

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It Stops Here: Standing Up for Our Lands, Our Waters, and Our People

It Stops Here is the profound story of the spiritual, cultural, and political resurgence of a nation taking action to reclaim their lands, waters, law, and food systems in the face of colonization. In deeply moving testimony, it recounts the intergenerational struggle of the Tsleil-Waututh Nation to overcome colonial harms and the powerful stance they have taken alongside allies and other Indigenous nations across Turtle Island against the development of the Trans Mountain Pipeline—a fossil fuel megaproject on their unceded territories.

In a firsthand account of the resurgence told by Rueben George, one of the most prominent leaders of the widespread opposition to the Trans Mountain Pipeline expansion, It Stops Here reveals extraordinary insights and revelations from someone who has devoted more than a decade of his life to fighting the project. Rueben shares stories about his family’s deep ancestral connections to their unceded lands and waters, which are today more commonly known as Vancouver, British Columbia and the Burrard Inlet. He discloses how, following the systematic cultural genocide enacted by the colonial state, key leaders of his community, such as his grandfather, Chief Dan George, always taught the younger generations to be proud of who they were and to remember the importance of their connection to the inlet.

Part memoir, part call to action, It Stops Here is a compelling appeal to prioritize the sacred over oil and extractive industries, while insisting that settler society honour Indigenous law and jurisdiction over unceded territories rather than exploiting lands and reducing them to their natural resources.

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